Showing posts with label AFP Tablets. Show all posts
Showing posts with label AFP Tablets. Show all posts

Tuesday, March 29, 2011

In the pink

Hi, it's me. 2010 was my last post? How did I ever let it go this long? I was actually sad to see that many of my blogfriends have also had a 2010 date on their last posts.....So....thought I'd switch up my layout a bit for some oomph!

Hello, 2011!

NBear is still NBear: loved, loved, and loved. :) I sometimes forget that she is now almost 10 - or perhaps, maybe I just prefer to not admit that to myself. So hard to see them grow. You blink and then it's all vaporized into something called "yesterday".

Biomeds? Yeah, they're still there - a little here, a little there when we can afford the supplements, but we have ceased being full-on DAN parents. Officially, that is. Geez, I don't even remember the last time we saw or spoke to Dr. Mielke. *shrug* Despite that however, we are happy. We're happy knowing that we at least feel that we have enough information to go forward on our own with our supplement purchases, and diet restrictions (those AFP tablets are the BOMB!) for our NBear. We're happy seeing her come into her own, whether or NOT she is helped by the supplements we provide (did I mention we also still love Enhansa?). But most of all...

I am happy. I am happy that I now realize and accept - though this may not have been in my thoughts when I first started the blog - that NBear will probably never be the "normal" I had once envisioned for her when we started this journey. I am happy that I have grown to be a little more patient with understanding her, and that everyday seems to bring me closer to being able to breathe through the rough times (highly important for sanity reasons!). I am happy that I am supported by many loved ones - friends, family, and strangers alike.

But in the end, my happiness comes in the form of my three Bears, led by my beautiful first-born Toy Story-obsessed (doubt she'll EVER get over that movie mania), funny, loud, loving,....and yes, autistic...NBear.

To happiness,*clink*, and the many beautiful shapes it is able to take.

...and hello, 2011. :)

Friday, May 1, 2009

Enhansa - wow!

Have you guys seen this?
How long have I been under a rock?
I happened to be perusing the ourkidsasd.com website (finally) - my ultimate goal being to purchase NBear's precious AFP tablets and Trace Minerals (teeth-grinding is at an all-time high, and we really saw results when she was taking those), when...

THIS caught my eye.

Faster than Paris Hilton could produce another pout, I told the Huz via email (and SHOUTmail...and yup, it's what you think!) about the link.

I really, really, really, want to try it out.

Has anyone else?

Saturday, January 17, 2009

The end. For now.

Before I begin a post that is long overdue, I really would love to thank the readers and dear friends I have out there! It's neat how people come up to you and say "I read your blog! It's very interesting - I have a friend who has kids with autism..." (that was from little sister Val *hug*), or when people you haven't even met, make their chat status read "Gotta love the Cinderella Rain and Dancing Bananas" and your heart explodes (that was for robot number BF3L:RCPB - you know who you are!) Little comments and awareness-moments like these really do give me the confirmation that I am of help...or rather, my NBear is :) So, I do thank you all so very much! And now, we begin.....

Carolyn's holiday blog break was certainly nothing compared to this recent insane hiatus of mine (more like a hibernation, if you ask me!), but I'm so glad I'm back (and you're still here).

You are, right?...hello?......anyone out there?....

We made a very difficult decision after the new year hit: Nbear would have to stop her biomeds program, just until we could get back on our feet again. *sob* The Huz was the first to bring it up, which was a LOT ironic, being he was the force du jour in this entire scenario. Needless to say, the times are not on our side -- nor that of the entire nation's!

So, with a heavy heart, we agreed to use up the last of the B-12 shots, the glutathione ointment, and continue to give her the supplements until they too were gone. (Of course he made it VERY clear that this was just a "break", and nothing more!) So, I braced myself for an extreme regression period, or - heaven forbid - the devastation of seeing all of our hard work (and hard-earned money) go down the drain in the form of losing NBear's progress completely!

I have to admit, without the daily schedule of supplements and measuring spoons and watching the clock, and write that down to remind us that we already gave it to her this morning, and today is shot day will she stay still and so on and so forth, I immediately noticed the very first change -- but it wasn't with NBear.

My husband's stress level had taken a wonderful, almost Olympic-level dive. :) All the months of biomeds and DAN! protocols had certainly taken their toll (though we certainly don't regret any of it), and it was nice to see the "ease" seep back into his eyes. It made me - yet again - aware of how lucky other parents were, not having to go through what we in the A-club world go through. And oh! How wonderful it was to just have to take the AFP tablets with us, and be free of the arsenal NBear usually had to have: to not have to pack her meds when we anticipated staying late at a get-together (though we still have to pack some of her gfcf food) was heaven.

Did she change?
Honestly, I'd have to give the dreaded two-fold answer.

Yes: She has been Ms. Defiant these past few weeks, but has taken an interest in rollerskating, thanks to the Christmas present from daddy. I'm not sure if her frustration lies in the fact that the 2-week Christmas break didn't offer her much of a "fun" schedule (that would be mom's fault), or if she's at an age where she's just more aware of...well, not wanting to follow orders. Isn't that puberty, though? *ugh*

No: Other than the aforementioned, however, she is still my very verbal, very playful, very social NBear. Sure the language still needs work, but she has still retained what we saw her gain. I love watching her play, play, play with MBear. She does get her silly moments (and that's when I remember Dr. Mielke's warning about yeast overgrowth, and have to warn myself to calm down, and just enjoy the laughing spell for what it is) and I am warmed.

I have a feeling - despite what our nation faces in these dreary times - that the best...
is yet...
to come. :)

Happy new year!

Monday, August 18, 2008

other things...


Checked off MommyBear's "To-Do" list:

*forget to give NBear one dose of glutathione lotion AND Probiotics, and regret it for the rest of the trip :(
*share NBear's biomedical treatment with a stranger at Disneyland (You know, Jenny McCarthy's book?) - Smile and get even more excited when she mentions that she too is a teacher, and shares a concern for parents who are afraid to exit the world of denial!
*give NBear a few AFP tablets - we know she may be exposed to foods with a certain amount of gluten in them
*try to maintain composure when the kids tear the hotel room apart
*be creative when writing a comment card for the hotel

Tuesday, August 5, 2008

AFP Tablets

During our last meeting, Dr. Mielke gave us these tablets for NBear - being that her allergic reaction to gluten was higher than what the Doc had expected.

They're chewable, so easy for my "I-can-swallow-capsules-now-anyway" big girl to take. (try saying THAT 5 times in a row!) :)

They're nice to have, considering any possibility that she may ingest any type of gluten or casein. They also came at a perfect time, because we were planning our summer destinations: Monterey (*check!) and Disneyland in Anaheim. (Thought I'd add the city in, lest you thought we were insane enough to bring all three munchkins to Florida!)

She took two tablets after Monterey because we didn't pack her her usual gluten-free lunch (I had to endure the Huz's evil eyes because it was my suggestion that we try to survive without it). Fortunately, the cafe had hot dog and french fries available. Sans bun, of course. Still, we were being overly cautious.

It's just nice to know that these pills - and this website! - exist.

Pass it on!