(The song sounds so much better SUNG than in mini-lyric form!)
Oh boy. This morning was not a good one for NBear.
Huz and I recently decided - because of the cooling weather, NBear's room is less sauna-like than it had been during the heat wave - that it was time to have her sleep in "The Princess Bed" again. In other words, it was time for her to leave the comfort of mommy and daddy's HUGE bed, and learn how to enjoy the privacy of her own room. We threw in a new twist, though: she would be joined by her unwilling little sister, MBear. (and I mean 'unwilling' in the purest form, guys - this poor kid didn't see it coming until she was unceremoniously placed in her sister's bed, and the night light was switched on. If her thoughts were audible, the entire neighborhood would've heard: "WHAT THE HECK???....WHERE ARE YOU GUYS GOING???")
Needless to say, those two did not have an enjoyable night. Not only did they fight and fidget before actually going to sleep (this was not just limited to slapping, pulling hair, and kicking), but when they did fall asleep, it lasted a mere 3 hours. We awoke (or semi-awoke, on my part) to the relaxing sounds of the doorknob turning, two children crying and whining, and - the most dreadful of all - the sound of the bed squeaking as it adjusted to the weight of the two new bodies crawling under our comforters.
Sucky night = not much sleep = sucky morning = NBear's refusal to get dressed for school = refusal to take meds (she did later, though) and eat breakfast = getting to school late = refusal to get down from the car to go to her classroom ("I'm sick" were her exact words) = Huz's and my patience levels flying out the window. I had a patience level?
But, I must remember that - autistic or not - she is allowed bad days.
We all are.
...and what do we, her wonderful parents, do after we pick her up from school on this BAD day?
Why, we take her to Kaiser for a repeat urinalysis test that Dr. Mielke requested, of course. What grouchy kid wouldn't LOVE to be forced to sit on a toilet so mommy can collect her urine in a cup for the ump-teenth time? Huh? It was not a shock to me at all when - after they called her number - the only one walking up to the lab receptionist was.....ME.
Mommy: *signaling lovingly to NBear* Come here, honey!
NBear: *with a glare that could kill* No, thank youuuuuu!
Mommy: *whispering to avoid any MORE embarrassment* It's just pee-pee, honey. No blood, I promise, ok?
NBear: NO bleeding! No blood!
Mommy: *to the receptionist* I'm uhh...just....going...to get her..ok?
NBear: UH-UH! *shaking head*
Mommy: Come on, honey! I promise, just pee-pee...I promise:)
~alas, her test results came back, and oddly enough, the results were THE SAME as the initial test taken in May. (she showed a high amount of white blood cells in her urine - a sign, Dr. Mielke mentioned, that her body is fighting some sort of infection)
On that note, I must insert a HUGE thanks to NBear's pediatrician for being so willing to run these tests, despite the fact that they were requested by a doctor whose practices do not fall under their umbrella of care. I've heard many horror stories of parents whose pediatricians did not support any DAN! doctor protocols -let alone lab requests, and ended up having to pay for something their insurance companies could have easily covered. (These tests are NOT cheap!) *side note* The tests Dr. Mielke requested were what you would call "normal" tests, and are usually ordered on a regular basis for patients, anyway. She wanted to save us money by having our clinic - instead of hers - perform them:)
Don't get me started on the whole "insurance-won't-cover-this" issue, either.
I prefer to end my days on a good note. :)
~nite.
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